Who said trucks are for boys!

An Article that hit close to home

This article doesn't deal with Erb's Palsy but this mom definitely had some of the same feelings I still have about her birth experience.

Getting Past the Grief of a Child with Special Needs

18 months old today

I live at the Dr.s Office

Camryn is sick again. I seriously can't believe it. Her school called today to tell me she had fever and wasn't acting herself. I brought her home to nap and she was having trouble napping...she had trouble sleeping last night too. It turns out she has STREP! Poor baby...anyway she's on another round of antibiotics and hopefully she'll start feeling better soon.

Just Being Honest

Sometimes I wonder if I'm overreacting. The answer, is probably yes. I really have a hard time getting over my anger about Cam's arm. I may have written this before but it's so hard. Every time we go to Dr. Grossman it is a reminder of what we are dealing with. Yes, she is doing better but she will never be 100%. That bothers me as a mom. She will always have issues with her left arm. Even now at 18 months old she has to wear a night brace, will she have to wear a brace for the rest of her life? I have no clue.When I think of her future I get mad. I start thinking about all the limitations she may or may not have. I know to some people it's just an arm, but there is just so much more to it for me. There's the fact that she may never have a perfect ballerina stance because he arm won't allow it. Or when she's wearing a tank top her shoulder blade may stick out. I know these things seem minimal to some but not to me. Not to me who expected everything was going to be fine throughout her entire pregnancy.

Progress Update

Today we went down to Miami Children's Hospital to see Dr. Grossman. We got a great update and he was really happy with Camryn's progress. Some new updates are, are that we are going to be making a night splint in the near future, this will help prevent elbow tightness and hopefully help the small contracture that is already there. We will also be using the soft splint more for overhead reaching. Dr. Grossman also mentioned starting constraint therapy when Cam gets a little bit older. The constraint therapy is going to be an intense three week program down at MCH where her good arm will most likely be casted. I'm not sure of the exact details or when it will be a go but we are definitely going to do it since Camryn is a good candidate for it. I will do whatever I can to help get her arm better and functioning as much as possible. When I know more about that I will definitely update. We will see him again in 2 months to reevaluate how she is doing and see how she is doing when the botox wears off. He will decide if he needs to do it again :(  

Sick

Cam has been sick since last week. She has had a nasty case of diarrhea and we have no idea why. She's teething which definitely could be a cause but for this long? I took her to the doctor and we are waiting on some test results. I haven't changed anything in her diet and we've been feeding her the BRATS diet now for 3 days. I'm worried she may become dehydrated but I'm doing my best to keep her hydrated and drinking. It's so frustrating because I have no idea what is wrong and her poor tush is raw from the poop and wiping. We've been putting Maalox on her tush to act like a base and covering it with aquaphor which seems to be helping. I've now had to take two days off of work and Tuesday we have our appointment at Miami Children's for her arm which I'm not going to postpone. On another note, we made sock puppets with her today and she loved them! She loved to wear them and was pretending to talk with them! It was soo adorable.

Being Tired

As I sit and type this my eyes are slowly closing over and over again. I'm exhausted. I'm always exhausted and feel like I can never catch up. I know being a parent is exhausting but being a working parent is even more exhausting. On top of working there is all the therapy too. What do you all do to snap out of the tiredness? I keep going but I feel like at some point I'm either going to get sick or just not be able to function. My husband and I are making changes to our diet tomorrow and I'm hoping that will help :) Cleaner and healthier eating only.