One Year Anniversary

A year ago yesterday Camryn had her first surgery. I am so thankful for her amazing doctors and my family for their support. It was one of the hardest and longest days of my life. Almost 9 hrs in the OR watching other families come and go. All of it has been worth it. Camryn's progress amazes all of us every day.

At home therapy

Using Cheerios and a shoe lace to string Cheerios.

Constraint Therapy/Double Splinting

Weekend Getaway

My husband and I went away for a long weekend to St. Augustine. It was a great trip! We did a ton of walking and exploring and touring. The food wasn't great except for a couple places we went to GAS and Yardbird Cafe. The other food wasn't great. Anyway, Camryn spent the weekend with my father and his girlfriend. They did a great job taking care of her and it looked like she was having a great time for the pictures. After all the work packing us all up and driving to St. Augustine for 4 + hours today we had to pack up and drive home and unpack again. I always forget how much work going away is even when it's just for a weekend. I'm pooped!

This is Awesome!

Basketball Player with Erb's Palsy

More Splints

Today we made Camryn's 8th splint. This splint was not for her left arm but for her right arm and hand. We are making a splint for her good hand so we can start restraint therapy. To say she was unhappy while making the splint is an understatement. She was mad and she's going to be more mad when we start constraining her good arm. Everytime I hear her cry because of something that has to do with her arm my heart breaks a little more. Sometimes I feel like everything we do feels like torture to her. Something she can't understand right now is good for her. It breaks my heart to think we have a lifetime of stuff ahead of us for her arm.

Thumb

So I've been saying for a while that Cams thumb looked funny to me and everyone blamed it on her rotation. Her rotation is finally really good and we've discovered that her thumb really doesn't come out. We are working hard on hand exercises and fine motor exercises to get those muscles stronger so that her thumb can come out all the way. Just another thing to add to our list to work on.

Speech Therapy and OT

Progress

Not only is Camryn getting overhead with her splint she started trying to do it without. The other day she reached overhead twice while at the playground reaching for a bar near the slide. It wasn't perfect but it made me cry. She's really making progress, it's incredible to think a year ago this month she had her surgery. 

On another note, we went to the ENT today. No dairy and saline in nose 3x a day so it makes her breathe in through her nose. We go back in 3 weeks for hearing test and follow up.