Exhausted!

There are no words to describe how tired my husband and I are. Camryn has her official second cold and is miserable. She was up all night last night crying, coughing and sneezing. We've tried every medication/holistic medication you can give a baby for a cold and nothing worked!! We wound up giving her benadryl at around 2 in the morning and she fell asleep for an hour! I can't believe she's not acting tired this morning. We had to cancel therapy which I have never done, but they have a sick policy and I wouldn't want her to get anyone else sick. I hope she gets better soon we have a playdate planned for tomorrow with some of our favorite people. (our friend support system)

5/30/2013

Do you ever just have one of those days where you feel like your entire first year of your child's life has been nothing but getting her arm to move?! I'm definitely having one of those days today. I don't even think I've ever purchased a toy for Camryn without it being for some type of therapy. Even while we are feeding her I put it in front of her left hand so that she is enticed to use it. I hope during this second year I get a chance to enjoy Camryn a little more and not be totally encompassed by getting her arm better. 

On another note, we have her one year early steps meeting on Tuesday to go over our new goals for her second year. I wonder what happens when she turns 3? I know Early steps stops but than what? How much therapy will she need?

Support Chat

I'm excited because today I posted on facebook about starting an online chat support group for parents with Children with Erb's Palsy and I'm already getting responses. If anyone reads this on here and would like to be part of it please feel free to contact me at the bottom of the page or because a member on google connect and like the blog. If not please feel free to find me on facebook and friend me. I'm not sure what interface I'll be using but I'm hoping to get a chat going for JUNE!!

Gotta start somewhere!

Stem Picture

5/29/2013

It's pouring out! Which makes me want to go absolutely no where with Cam because I'll get soaked and so will she! I guess today will be a day filled with tons of therapy and her STEM machine. I don't know if any of you are following my pinterest page but we have started to put the STEM in a fanny pack so she can be on the go and still have the machine working. I'll post a picture later today. Yesterday, Cam wore a tank top and her left shoulder kept falling off. I've heard this is common with Erb's Palsy because of the way the shoulder muscles are atrophied, it just made it more real.

Scary Statistic

Is this true even for parents with kids with Erb's Palsy?

Click here for the NYT article:

The Psychic Toll Paid in a Special Needs House

Attendance

You know those awards that kids get in school for good attendance? I think Cam and I should get one of those. We've been going therapy for a year now and we have only missed therapy twice. Once because I had a flat tire I needed fixed and the other because the therapists were both away. YAY to us!